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15 June 2015This debate pack has been prepared for the Westminster Hall debate on access to drugs for ultra-rare diseases on Tuesday 16 June at 2.30pm. It provides a summary, relevant parliamentary and press articles and links to further reading. The debate will be preceded by a Digital debate on Twitter organised by Digital Outreach and Genetic Alliance UK at 2pm on 15 June. Anyone who wishes to contribute to the Twitter Rare Disease debate can do so by using the hashtag #RDdebate.
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